T21Mom-A Down Syndrome Podcast

The Christmas Show

Mary and Ron discuss Christmas traditions and how she includes Ainsley in all of them.

Don't forget to send an e-mail to info@t21mom.com to enter the contest to win one of two Sm:)e Band Christmas CD's.

 

The Sm:)e Band Website

Trust - by The Sm:)e Band

Munchables Chewelry

Pop-Up Pirate

T21Mom - Episode 22 : All About Us

In the last episode of Season 1 Mary and Ron talk about how it all started. From our favourite episodes, where the show might go in Season 2, what we're doing on the hiatus, and some possible forays into other media streams it's a broad ranging discussion.
There is wine, beer, and Miss A's Cookies to help us along.

T21Mom.com Web Site Design by Doug at Doug Murray Productions

Theme Music by Nam Kyo Kim at Skylark Therapy

For more resources:

Down Syndrome Resource Foundation

Down Syndrome Diagnosis Network

Variety, The Children's Charity

T21Mom - Episode 21 : The Rockin Mom Retreat

Mary and Ron talk about her recent trip to Nashville for the Rockin Mom Retreat. Mary talks to a number of of the Retreat guests about where they're from and what they do for self-care.

Head on over to the T21Mom Facebook page for some pics and videos. A word of caution - wine may have been involved.

For more on musician Luke Bryan

For more on musician Mark Wills

T21Mom - Episode 20 : Dr. Karen Bopp – The Dual Diagnosis - Down Syndrome & Autism

Mary talks with Dr. Karen Bopp about a dual diagnosis of Down syndrome and Autism, something previously thought impossible. They also talk about therapies, diagnosis methods, and support networks.

Links mentioned in the show:

BRITISH COLUMBIA LOCAL INFANT DEVELOPMENT PROGRAM

AUTISM SOCIETY OF BC

AUTISM INFORMATION SERVICES OF BC

DOWN SYNDROME RESOURCE FOUNDATION

T21Mom - Episode 19 : Building Your Tribe

Mary and Ron discuss the need to build a group of friends and family for emotional support.

T21Mom - Episode 18 : Surviving the IEP - Individualized Education Plan

Mary talks about her experiences with creating an Individualized Education Plan for Ainsley and the struggle of getting the school to play a positive role in the process.

Link to the One Pager

T21Mom – Episode 17 : Katie Rinald – Potty Training

Mary talks with Katie Rinald of Blackbird Special Education about her approach to intensive potty training.

Blackbird Special Education   http://blackbirdse.com/     Katie@blackbirdse.com

Chummie Alarms     https://chummiebedwettingalarm.com/

T21Mom - Episode 16 : Jen Ghioda - Early Intervention Support Worker

Mary talks with Jen Ghioda, an Early Intervention Support Worker, about her role in finding and securing resources for families of children with DS.

T21MOM - EPISODE 15 : Susan Fawcett Director of Therapy, Behaviour, and Family Support Services – DSRF

Mary talks at length with Susan about 10 strategies for dealing with behavior challenges, including the dreaded “drop and flop”.

Down Syndrome Resource Foundation https://www.dsrf.org/

10 Positive Behavior Support Strategies

1) Down syndrome-specific setting event strategies.
2) Environment-specific setting event strategies.
3) Effective requests.
4) Offering choices.
5) Visual supports for behavioural expectations and predictability.
6) Incorporating preferences.
7) Safety signals.
8) Functional communication training.
9) Positive reinforcement of desired behaviour via praise and other rewards.
10) Actively ignore and positively redirect minor problem behaviour - Stone Face.

Here is the article Susan talked about:
Patel, L., Wolter-Warmerdam, K., Leifer, N., & Hickey, F. (2018). Behavioral characteristics of individuals with Down syndrome. Journal of Mental Health Research in Intellectual Disabilities, 11(3), 221-246.
Google scholar link: https://www.tandfonline.com/doi/abs/10.1080/19315864.2018.1481473

T21Mom Special Presentation – Brian Donovan & Kelly’s Hollywood

Actor, Producer, Director, DS Advocate, and Motivational Speaker Brian Donovan has an in depth conversation with Mary and Ron about his sister Kelly. The conversation roams from Brian & Kelly’s inseparable relationship that he documents in the film “Kelly’s Hollywood”, to his advocacy work, motivational speaking, and growing up in a very special neighbourhood in the ‘60s and ‘70s

Brian Donovan Web  http://www.briandonovan.org/

Kelly's Hollywood  http://kellyshollywood.com/Welcome.html

Brian Donovan - You Can Change The World   https://www.youtube.com/watch?v=Xj9TkAwc6-0