T21Mom-A Down Syndrome Podcast

T21Mom – Episode 13 : Jen Jacob of the Down Syndrome Diagnosis Network

Mary talks with Jen Jacob, Founder of the Down Syndrome Diagnosis Network, about their work with health care professionals so they better understand Down syndrome, and issues such as the impact of delivering the diagnosis. They also talk about the increasing success of the Rockin’ Mom’s Retreat.

https://www.dsdiagnosisnetwork.org/

T21Mom – Episode 12 : Talking Translocation Down Syndrome with Jenna

Mary talks with Jenna about a form of Down syndrome called Translocation that can be inherited under certain circumstances. It’s a fascinating and easy to understand look at the genetics of Down syndrome.

T21Mom – Episode 11 : Cally Wesson of Variety The Children’s Charity BC

Mary has a wide ranging discussion with Cally Wesson, CEO of British Columbia’s chapter of Variety The Children’s Charity. Cally explains the history of Variety, services that they provide, volunteers, and events they put on, including the annual Show Of Hearts Telethon. Recorded on location at the Variety offices in Burnaby B.C.

https://www.variety.bc.ca/

https://variety.org/

T21Mom - Episode 10: Walk Run Swim! Physiotherapist Brenda Horton

Mary talks with Physiotherapist Brenda Horton about how she helped Ainsley, and other children with Down syndrome, learn to walk, run, and swim.

T21Mom – Episode 9 : Understanding Occupational Therapy with Hina

T21Mom – Episode 9 : Hina, the Down Syndrome Resource Foundation’s Occupational Therapist joins us for a conversation about how children with Down syndrome can learn to understand and control their body’s feelings and movements, and why the term “Occupational” is a bit of a misnomer.

Understanding Sensory Processing  - https://www.spdstar.org/basic/understanding-sensory-processing-disorder

Developmental Progression Pyramid - (the pyramid is included in these presentation notes that can be found on the DSRF website)

https://www.dsrf.org/media/Lille%20Ryan%20and%20Hina%20Mahmood%20Increasing%20Independence%20in%20School%20Aged%20Children%20with%20DS%20FINAL.pdf

When to Consult an OT - Document that outlines what types of skills OTs can work on with kids.

http://www.dsrf.org/media/When%20to%20consult%20an%20OT.pdf

T21Mom - Episode 8 : "Let's Talk" with Riley

The Down Syndrome Resource Foundation's Speech Pathologist, Riley, joins Mary for an in depth and wide ranging look at the work required to help kids with Down syndrome learn to communicate.

Here are some of the links mentioned on the show. For more links to studies and tips on speech and communication, please check our Facebook page "T21Mom".

Apraxia Kids – organization and web resources supporting people with Childhood Apraxia of Speech (CAS): https://www.apraxia-kids.org/

PECS – Picture Exchange Communication System - https://pecs-canada.com/pecs/

Signing Time - https://www.signingtime.com/

Signing Savvy (video dictionary of signs): www.signingsavvy.com

Touch Chat website – website for the AAC program Ainsley currently uses: https://touchchatapp.com/

Down Syndrome Resource Foundation (DSRF) - www.dsrf.org

 

T21Mom - Episode 7 : Baskets Of Love with Danielle Gibbons

Mary talks with Danielle Gibbons, founder of the non-profit Baskets Of Love. Baskets Of Love delivers baskets full of information and goodies to new parents of babies with Down syndrome. They also talk about the Tea21Moms event.

Links:

Baskets Of Love Contact   www.basketsofloveds.com   E-Mail - info@basketsofloveds.com

Instagram - @basketsofloveds    Facebook - Baskets of Love Down Syndrome Support Society

Tea21Moms Contact   www.tea21moms.com   E-Mail - Tea21Moms@gmail.com  Instagram - @tea21moms   Facebook - Tea21Moms

 

T21Mom - Episode 6 : Work Life Balance

Mary talks to Ron about the challenges and struggles of life as a single mother of a special needs child. Her labours to find suitable daycare, travelling to and from specialist appointments, finding time for the basics like groceries, and extensive efforts to work with her employer to understand her unique circumstance.

T21Mom - Episode 5 - Interview With Kelci

Mary talks with the amazing Kelci, a mother of eight who's family chose to adopt another two babies with Down syndrome. Check out her Instagram at BF_BROS.

T21 Mom - Episode 4: Mom Life And Special Needs

Mary talks about life as a single mother of a special needs child. Mary's experiences as advocate, parent, doctor and therapist make for a lively discussion.