T21Mom-A Down Syndrome Podcast

T21Mom - Episode 63 : Let Rosie Ride - Amanda Caffrey

Mary talks with T21Mom Amanda Caffrey, mother of Rosie, about her New Jersey school district's refusal to let Rosie ride the school bus with her brother and care aide.

Link to Public Facebook Group "Let Rosie Ride"

T21Mom - Episode 62 : Stephanie Mullowney - Paper Dolls Photography

Mary talks with Nashville based photographer Stephanie Mullowney who specializes in portraits of children with Down syndrome. Stephanie is also a single mother of a 7 year old daughter with Down syndrome.

Paper Dolls Photography Website

T21Mom - Episode 61 : Lindsey Strickland of Worth The Conversation

Mary talks with Lindsey Strickland, founder of "Worth The Conversation" about sexual abuse in the Down syndrome community. They discuss tips on prevention, how to talk with your kids about it, and recognizing the signs of abuse.

 

Worth The Conversation Website

T21Mom - Episode 60 : Dr. Brian Skotko and DSC2U

Mary talks with Dr. Brian Skotko, founder of the Down Syndrome Clinic To You (DSC2U). DSC2U is a groundbreaking web portal for information and consultations on Down Syndrome.

DSC2U Website

T21Mom - Episode 59 : Julia's Way-Breastfeeding Your Baby With Down Syndrome

Mary talks with Ella Cullen, author of "Breastfeeding and Down Syndrome: A Comprehensive Guide for Mothers and Medical Professionals", and founder of Julia's Way a resource group for mother's of children with Down syndrome who are having difficulty breastfeeding. Joining the discussion are Jill Rabin, a certified lactation consultant and Rachel Murphy, a mother who has succesfully used the techniques discussed.

Julia's Way

e-mail   love@juliasway.org

 

T21Mom - Episode 58 : Lauren Costabile & Hearts of Joy International

Mary interviews Lauren Costabile. Lauren is the founder of Hearts Of Joy International, an organization that arranges heart surgeries for children with Down syndrome in less developed countries.

Hearts Of Joy International

T21Mom - Episode 57 : Reilly Cate & The Trium Tribe

Mary has a conversation with inspirational16 year old Reilly Cate who runs a non-profit that delivers gift baskets to families who have adopted children with Down syndrome

The Trium Tribe

T21Mom - Episode 56 : Katie Rinald Returns With Toilet Training Tips For Older Kids With Down Syndrome

Mary welcomes back Behaviour Analyst Katie Rinald for a conversation about toilet training techniques for older kids.

Blackbird Special Education Website

Katie can be reached at katie@blackbirdse.com

T21Mom - Episode 55 : Andrea Lee On Sexual Health & Development

** Special Warning**  This program involves a very frank discussion of human biology, puberty, and sexual development. Personal discretion is advised.

Mary has a very frank discussion with Andrea Lee of the Down Syndrome Resource Foundation about special needs kids and issues around puberty and sexual health.

Teaching Children with Down Syndrome about their Bodies, Boundaries, and Sexuality: A guide for Parents and Professionals – Terri Couwenhoven
The Girls Guide to Growing Up – Terri Couwenhoven

The Boys Guide to Growing Up – Terri Couwenhoven

Talk Sex Today – Saleema Noon and Meg Hickling (I don’t think I actually mentioned this but it’s a great book that gives scripts for parents to talk about these things with their children, including a chapter on talking to your child with disabilities)

Sex is a Funny Word – Cory Silverberg

LINKS:

Circles of Intimacy – learning about different relationships

Real Talk – relationship and sexual health education for folks with cognitive disabilities. Lots of great videos to watch that would make for great starts of discussions.

Jessy Wollens – Special educator and sexual health educator

Lindsey Strickland – sexual abuse prevention worker and Down syndrome parent and advocate

Zones of Regulation

T21Mom - Episode 54 : The Fall Of Mary And How You All Picked Her Up

Ron and Mary talk about her recent fall that broke her foot, displaced her fibula and badly sprained the other foot. And about the "Mom Community" that came together to help her in a time of need.